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Nine-year-old Evan Cousineau was a vibrant three-sport athlete when he was diagnosed with a genetic metabolic disease. Our lives were turned upside down on May 1, 2007 when we were told that Evan had NO HOPE. Because of our "Fight for Evan", we now fight for every patient and family in need by raising awareness and helping educate the nation about donation in all capacities, so we all have HOPE!!
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> All Events
January 2010 -Totals
Our total new donors for January is 251!
Online "Be The Match" Registry Donor Drive: Now thru February 28, 2010
You can join the "Be the Match" registry by going to the BTM website and follow the instructions for joining the registry, and when prompted, enter this promo code: "bah0210" Understand the commitment, and ease of joining as well as donating, should you have the privilege. It does cost about $100 to place someone on the registry, so do not take this commitment lightly, and if you can help contribute financially as well, the BAHBAD and Be The Match Foundations would appreciate your help. Questions?? Contact Shelley Baker 714/296-8479 or sbaker@nmdp.org Be The Match Representative
February 3 - American Red Cross Blood Drive & Marrow Registry, Mission Viejo CA
Saddleback College
9am-3pm
28000 Marguerite Parkway
Bloodmobile in Village area
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February 8-10 - American Red Cross Blood Drive & Marrow Registry, Fullerton CA
California State University Fullerton
800 N. State College Blvd. , Fullerton, CA 92831-3599
PARKING INFORMATION
Parking Information Center Arts Drive
(on campus, east of the intersection of Arts Drive & State College Blvd.)
Fullerton, CA 92831
9am-3pm
Titan Student Union, Pallivion C
Sponsor: Student Health Professionals Association
February 12 - San Diego Blood Bank Blood Drive & Marrow Registry, San Clemente,CA
Sponsor: Fitness Elite & Fitness Elite for Women
10 - 3
Mobile drive
Address: 638 Camino de los Mares
San Clemente CA 92673 (Ocean View Plaza)
(949) 661-6060
February 17 - American Red Cross Blood Drive & Marrow Registry, Costa Mesa CA
2701 Fairview Rd.
Costa Mesa, CA 92628-5005
The bloodmobile will be parked on the west side of campus
near the Lit/Lang building and the Chemistry building.
9am-3pm
February 17 - American Red Cross Blood Drive & Marrow Registry, Orange CA
Chapman University One University Drive, Orange, CA 92866
• Phone: (714) 997-6815
10am-4pm
February 23 - American Red Cross Blood Drive & Marrow Registry, Fullerton CA
California State University Fullerton
800 N. State College Blvd., Fullerton, CA 92831-3599
Parking Information Center Arts Drive (on campus, east of the intersection of Arts Drive & State College Blvd.) Fullerton, CA 92831
Location: Bloodmobile-
Group sponsor, Volunteer & Service Center
9am-3pm
February 24 - American Red Cross Blood Drive & Marrow Registry, Santa Ana CA
Santa Ana College
1530 W 17th St - Santa Ana, CA 92706
- 714-564-6000
February 27, Marrow Drive & Race on the Base - Los Alamitos, CA
The 29th Annual Los Alamitos Race on the Base will be held on
Saturday, February 27, 2010.
The City of Los Alamitos, the California National Guard and the Cancer Support Foundation are happy to invite you to participate in the community event.
Approximately 6,000 participants, spectators and volunteers attended the last event.
The race is held on the runways at the Joint Forces Training Base in Los Alamitos and features helicopters, planes and military vehicles with music throughout the course.
All proceeds will benefit the USA Water Polo National Training Center at the Joint Forces Training Base. The 5K Walk is co-hosted by the Cancer Support Foundation and a portion of the proceeds, generated from the 5K Walk and through race registration, is donated to the organization.
- click the link below for more information
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Unforgettable Prom
It's that time of year again! On Friday, April 23rd, Friends of Scott is hosting its 4th Annual Unforgettable Prom Night! Prom is often a highlight of a teenager's high school years. It's a "can't miss" event, but kids with cancer often do. So for one special night, children undergoing cancer treatment from Rady Children's Hospital and Kaiser Hospital or cancer survivors, are treated like stars. The teens will be all dolled up-the guys in tuxedos provided by Friars Tux and the girls in gorgeous gowns provided by the Princess Project-with flowers from La Mesa Florist. Fancy limousines will escort the teens from their homes throughout San Diego County to the San Diego Hall of Champions in Balboa Park. All of the Prom activities, from the music and food to the goodie bags and photo booth, are all donated by many wonderful community agencies and individuals like you. Your support is greatly appreciated! If you would like to make a donation to support this year's Unforgettable Prom, please visit our website. http://www.friendsofscott.org/prom2010sd.aspx
"BAHBAD makes it to european water polo website"
"BAHBAD makes it to european water polo website"
check out the link !
Save the Date FEBRUARY 1 Todd Rocks! Benefit Concert House of Blues Anaheim (Downtown Disney)
Dear Friends, Late last fall, Todd Larsen, a young music teacher who just founded the Irvine Music Academy and a 14-year veteran coach in the 2,000+ member Irvine Swim League, was suddenly diagnosed with leukemia. In response to the shocking news, Larsen’s immediate, lengthy hospitalization, and in an effort to support Larsen’s wife and infant son, the OC community has rallied to raise funds to offset the costs of his expected year-long, aggressive cancer treatments.
On Monday, February 1st, the public is invited to support Larsen with a benefit concert at the House of Blues Anaheim (Downtown Disney).
Hosted by KLOS-FM’s Uncle Joe Benson, the evening will feature special performances by Vivian Campbell, guitarist for Def Leppard and Whitesnake and Mark Schulman, the drummer for Pink, Beyonce, and Sheryl Crow; and Jon Abrams, the star of Broadway’s “Movin’ Out.”
In a unique way to help this beloved music teacher while gaining stage experience, young pupils from Larsen’s “School of Rock” at the IrvineMusicAcademy will headline the entertainment.
Bands including 10 Fold, Chix Rule, Out of Order, and Vicious Beat are scheduled to perform. A live and silent auction and raffle will round out the evening’s entertainment.
TIME: 6 p.m. to Close
WHERE: House of Blues Anaheim (Downtown Disney)
1530 Disneyland Drive, Anaheim, CA
phone (714) 778-2583
If you would like to donate a raffle item, make a cash donation or purchase tickets to the event, please contact Ms. Sandy Jones at 949.252.2046.
Thank you – We hope to see you on February 1st.
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"Nigerian Winter Olympic hopeful needs bone marrow transplant."
Seun Adebiyi, hoping to qualify for the 2014 games,
was recently diagnosed with rare and aggressive cancer.
He is seeking to recruit 10.000 new potential donors to the national registry.
To hear his story check below...
Trevor's Story on KGO Radio, San Francisco
A very touching story about Trevor's journey and the need for people to join registry to give HOPE to patients around the world. Well worth the listen....
Largest-ever kidney swap donors, patients meet
WASHINGTON - Thirteen patients with healthy new kidneys from what's believed to be the world's largest kidney exchange met the donors who made it happen Tuesday — including three who are sure to face the question, "Why?"
Jake Olson's Story of Courage...
There is comfort in the comforting of others
December issue of SELF magazine-
The December issue of SELF magazine will feature a four-page, in-depth article on marrow and cord blood donation. Reporter Sabrina Erderly broadened the focus of a story she was writing about a donor and recipient to include information about cord blood donation. Until she received a cord blood media kit from the NMDP, she was unaware that cord blood could be a source for patients who need transplants. Katie Quinn, a DKMS-Americas donor, donated to leukemia patient Anna Robinson two years ago.
Read the full article here:
One girls wish for an organ transplant, and how the wish came true.
DonateGames turns used video-games into funding for medical research to help kids. By Michael Lafferty
“There is so much goodness coming with what we are doing” Nothing touches the heart so much as children in need. Jim Carol knows that agony personally. In 2007 his 11-year-old son was diagnosed with Philadelphia Chromosome, a rare form of leukemia. The Carol family did what any family would do – they moved their family from California to Seattle and to a place where their son, Taylor, could get the best care, beginning with a bone marrow transplant. As Jim wrote on the DonateGames Web site: “We ended up living in Seattle Children's Hospital for almost a year during his chemotherapy. Taylor and the other kids at the hospital were terribly sick, scared and isolated, but video-games played a big part in helping them get better.”
The Stott Family - Be The Match
Gene therapy makes major stride in 'Lorenzo's Oil' disease
An experimental treatment stabilizes two boys with the rare,fatal degenerative disorder known as ALD.
Researchers hail the findings, which come on the tail of other gene-therapy successes.
By Thomas H. Maugh II November 6 2009
In the third gene-therapy success of recent weeks, French researchers have arrested the progression of the rare and fatal degenerative disorder adrenoleukodystrophy,
which was at the heart of the popular movie "Lorenzo's Oil."
The disease has stabilized in two boys who were 7 years old when the therapy was performed two years ago, the team reported today in the journal Science.
The complete article can be viewed at:
Community Rallies to Help Irvine Coach who has Cancer: OC Register
OC Register 10/14/2009
The Irvine neighborhood of Northpark has rallied around swim Coach and music teacher Todd Larsen, who has started treatment for leukemia
We need YOU to help us run Donor Drives
Please check the Upcoming Events in your area and consider volunteering to help run the drives.
We can ONLY run drives with the help of our "Volunteer Ambassadors", so having a large group of individuals that are committed to the cause is critical. Whether it is for a two or six hour shift, your choice, please lend us your hand and voice. Once you work a drive, you will see how ignorant our communities are, and yet, how willing they are to get involved once you help them understand the need and ease of joining the registry. Contact us to be placed on our volunteer notification list.
Arizona Woman Finds Taxi Driver Is A Kidney Match: AP
Associated Press 8/24/2009 Rita Van Loenen had no idea that a trip in Thomas Chappell's taxi cab could end up being the ride that saves her life....
A Double Blessing: Bismarch Tribune
While this article was written in 2006, the facts about cord blood and the gift it can give to save lives remains the same.
Donating Bone Marrow, Saving Lives: CNN
After a man donates his stem cells, his company takes on task of bringing more people to the registry.
A Donor Egg Gives Life--and A Death Sentence: LA Times
This article from December 8, 2007, chronicles our friend Krystie and her dad's journey from the HOPE of starting a family to the horrific diagnosis of a genetic metabolic disease in their baby. You can follow their CB journey at CB krystie.
"Be The Match" Registry Launched
It's about finding a match"Be The Match" offers people the unique opportunity to help a patient by donating bone marrow or umbilical cord blood. Thousands of patients with leukemia and other life-threatening diseases depend on the "Be The Match" Registry to find a match. Visit the new "Be The Match" Registry website.
"Keep Hope Alive at the 2009 Wildflower Triathlon: An Opportunity to Be a Match and Save a Life"
Here is an article written by a women who is my mentor and dear friend, though we have never met in person. We are two mother's to be reckoned with, two mothers who have lost their boys, she from not finding that "donor" to give son HOPE, and I am mother who had the HOPE. We both are committed to making sure every single one of you have the HOPE of a donor by doing our part to raise awareness, education, as well as provide opportunities for others to join the National Marrow Donor Program.
The Power of Three: The Waconia Patriot
Imagine deciding to be an organ donor, but opting not to wait for tragedy to set the table. You donate one of your own kidneys to somebody who needs one now, perhaps changing their life and yours forever. Oh, and you have no idea who is getting your kidney.
Mother's Day Online Fundraiser
We have a "Mothers' Day" fundraiser going on, so while we are all feeling the effects of the economy no matter where we are in the world, we still want to give a special gift to the special women in our lives. You can do so easily, inexpensively, and 100% of the profits will benefit the Marrow Foundation c/o Evan's Entourage, so that we can alleviate the "fee factor" and fund committed donors who cannot afford the $52 fee associated with joining the registry. View catalog online though May 10th to place your order soon.
Brooke Maushund: "Hero of the Month"
Be sure to read about our April "Hero", Brooke Maushund, 13. You will see that age did not hold this teenager back from making a difference in this world!!
"Retreat for Grieving Mothers"
Join us during the week of May 18-24 at Faith's Lodge in Webster, Wisconson. Consider joining us for a few days or the entire week of companionship, support and healing for mothers who have lost a child, no matter how long ago, no matter what age, no matter what circumstances. This is an opportunity to sit with your grief, alone or with others, to contemplate life and begin to heal. Scholarships are available for housing, as well as help with airfare, and transportation from the Twin Cities area. Please share this with your friends and contact us for more info. We must have your commitment by April 15. Email ginac@bahbad.org for more info. CANCELED DUE TO LACK OF PARTICIPANTS (Will try again next year)
Volunteers Take Bone Marrow To Where It Is Needed
The ultimate job, being a courier for the National Marrow Donor Program. Job description: travel the country/world, all expenses paid for, transporting precious "stem cells and bone marrow" to patients in need!!
Cord-Blood Banking: Worth It Or Not??
Excellent article giving clear information about making yourself aware about cord blood banking, both public and private.
Select A Baby's Health, Not Eye Color
A very compelling bit of commentary by a father who lived it. Before you cast stones on a family who will do whatever it takes to save their child's life, or a family who understands the implication of having a child with a horrific genetic trait, try to just stand in their shoes. This topic is one that should not even be discussed around the water cooler. We should just be thankful that these families have options.
Got Kidney?
Please see this family's plea for a live kidney donor.
Cousineau Cup promotes marrow donations: OC Register
OC Register 10/17/09
The second annual Evan Cousineau Cup Water Polo Tournament, a fundraiser for the Be a Hero, Become a Donor foundation formed in memory of Evan, is being held this weekend. A dinner and silent auction will begin at 6 p.m.
Hero of the Month
Mark Rodriguez is an integral part of Evan's Entourage, participating actively in "Giving HOPE" by running donor drives in the Orange County area regularly.
Gently Worn Prom Dresses Needed for Teens with Cancer
The Prom Dress Drive is part of Friend of Scott's Annual "Prom". This unforgettable evening is for teens battling cancer and other life-threatening diseases. All dresses donated will be worn by girls attending the prom on April 24. Dresses must be received by April 1, 2009
Another Reason to Donate Blood
Gift of Blood: 59 Strangers Meet Man They Saved
2/16/2009
Celebrities Help Bring Awareness
A People Magazine Exclusive
Rihanna Helps 5-year-old Look for a Bone Marrow Donor
Most Kidney Donors Stay Healthy
With over 50% of kidney transplant donations coming from "live" donors, long term studies show good outcome.
Kidney Donors Have Normal Life Span
The groundbreaking report also finds that donors have fewer kidney problems than the general populace, perhaps because of stepped-up screening procedures.
Less Evasive Kidney Donation Technique Successful
Surgeons remove healthy kidney through donor's vagina
Be A Hero Become A Donor: OC Gazette
The Cousineau Family's local foundation that's raising awareness of how we can all give of ourselves to help those in need through becoming a donor in various means. July 2009
Help Find The "One for Jasmina"
If Evan's face doesn't sway you to join the Registry, maybe this one will.
Donor travels cross-country to see girl he saved graduate: OC Register
OC Register 6/16/2007 He watched is brother die, so he volunteered to save Stephanie....
Could You Be A Much Needed Life-Saver?
page 275 - look for the title above.
Local Troop Leads Effort in Saving Lives
For the last two years, Troop 1776 has helped people take the first step to become a bone marrow donor by assisting them with joining the Be the Match Registry. In 2008, 55 people registered; this year, 62 people registered! On Saturday, a woman came to Troop 1776’s Scout-O-Rama booth indicating that she registered with the Be the Match Registry last year, and she received the call that she was a potential match. After further testing, she was found to be the perfect match for an older man who is in desperate need of a bone marrow transplant. She will be donating her bone marrow today at St. Joseph’s Hospital. AMAZING & ABSOLUTELY WONDERFUL… a great example of Scouts (and Scout supporters) helping out in the community!
Help Toon Boom Save Lives...
Earlier this year, Toon Boom Animation began a campaign to save the man behind the voice of the Toon Boom Animation tutorials, Emru Townsend.
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